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First Gene Therapy for Hearing Loss Approved

The FDA approved a new treatment called Otarmeni on Thursday. It is the first gene therapy for genetic hearing loss.

The treatment targets a very rare form of genetic deafness. It helps people with a faulty OTOF gene.

This affects about 50 babies in the United States each year. After the approval Regeneron made a deal with President Trump.

The therapy will be offered for free. Reports say the free pricing was part of a larger drug pricing deal at the White House.

Sources say patients may still pay out-of-pocket costs for the surgery needed to get the therapy. One parent said their child was born deaf. After treatment the child can now hear.

Klear Note Gene therapy treats disease by fixing faulty genes. This is the first gene therapy approved for hearing loss caused by genetic mutations.

Key Terms 5
FDA
United States Food and Drug Administration; approves new medicines and treatments
gene therapy
treatment that fixes or replaces a faulty gene in the body
OTOF gene
a gene that when faulty can cause a person to be born deaf
out-of-pocket costs
money a patient pays themselves that insurance does not cover
Regeneron
a United States company that makes medicines and treatments
Verified Sources 4